Hi, I am 30 years old. I have never had epilepsy, but lately I have been feeling terrible of my intestines after 3 infections and a hernia that is kind of changing my intestinal motility.
I also have TSC and it has never caused me any issues aside from 2 very specific ungular fibromas. But since you all are using this shit for anti-aging and I am huge into matcha, resveratrol, and SCLP (optimized curcumin), I mean, I do need to take this medicine. At least in a low dosage.
My doctors don’t want to prescribe it. Do I really need to fly to Turkey to get it?
I am curious to see if even when I only got 1 SEGA and like 3 tubers and I have had them all my life, like, could rapamycin actually reduce them? Doctors suspects the SEGA is the cause of my myopia. This is huge. Like I will need less augmentation in my glasses. This is a very fountain of youth experience for me.
I’m not a doctor, so I’m not going to tell you to take, or to avoid, rapamycin. But you can find a list of doctors that prescribe rapamycin for longevity, and other approaches to getting rapamycin here: How to Get Rapamycin, Where to get a Prescription
You mention that " lately I have been feeling terrible of my intestines after 3 infections" - you probably want to be very careful about taking rapamycin if you are already getting infections. Rapamycin can lower your immune response and could make infections worse or more likely - so I’d recommend being cautious.
Why don’t they want to prescribe it, what about everolimus – I thought that was approved for TSC? (Everolimus is basically the same thing as rapamycin).
Technically that wasn’t TSC, but in that thread you mentioned the death of a 27 year old woman who died from sepsis from 10 mg/day everolimus. So important to keep in mind and be cautious of course. I would stick to “longevity protocols” but taking into consideration what my doctors were saying, e.g if they were suggesting a different dosing schedule.
Yes Everolimus is safe (and FDA approved - which means there’s been dozens of safety studies), there’s a small change to the rapamycin molecule. Usually people take the drugs here one time a week or less often, speculated to try and avoid mTORC2 inhibition (which might increase side effects) when doing so for longevity purposes.
Usually the dose is around 5 mg one time a week depending on bodyweight for expected longevity benefits. Starting with 1 mg one time a week and increasing up to 5 mg over five weeks.
Generally the recommendation is to find a doctor since there’s a risk with giving recommendations as everyone’s situation is different. I don’t think there are many here who knows TSC (which variants, what your genes are… treatment options, what to take into consideration… etc).
Vaccines are important, e.g Shingrix (against Shingles, etc) see this thread:
