I understand we’re all kinda guessing here. I’d like to think we’re making educated and informed choices.
Having said that, is there a specific level/dosage to strive for - knowing we are at a dose providing brain clean up? Lowest, highest?
Any broad range on Rapa levels when testing one day before next dose that would cause concern? Show benefits? Lower than __? Higher than……? Things to hone in on? What tests might I request?
Is there any general statement you could make regarding “getting closest to one’s optimal dose/and how to”? Do you consider our highest dose to be most beneficial or does it stops adding benefits at certain point seen in serum levels or specific bloodwork?
I’ve been taking 5 mg Rapa weekly for approx 9 months. I no longer experience any problem or my one and only side effect, feeling whooshy and tired for a day. This doesn’t factor in any CFS/fibromyalgia symptoms. Yes, I’m one of those.
I’m very in tune with my body and able to discern even the slightest change ie: two types of headaches I get, regular and whooshy, along with many other things, slight changes . This is because of my 18 year journey w/this dx, ongoing research, and trying anything, to date. I’ve been on my own trying to “fix” myself for quite some time. My findings are more effective than any tx/pill ever tried. And, I’ve tried all I could tolerate. Just a little background.
The same day i started my increase, early am, whooshy was back.
That same morning, I increased 2 mgs vs 1 mg, as I’ve titrated before. This is how/why I arrived here, taking Rapa, and increasing the dose. Mainly.
I can’t test for baseline, 8-9 mos later. I’d prefer not to stop and start over. I do believe my insides are likely doing better. Just a “gut feeling” and those come from a “knowing area” of our brain, not our gut, btw.
I’ll be 61 in Feb. And as many have said here,
“told I look in my 40s”, but I was always that way. Not a Rapa change. My thinking was more clear for a handful of months in the middle of this time period. I’d love that back please. And lotsa other stuff.
You said the least amount of change noticed was usually seen in younger/healthier people.
Doesn’t describe my situation:)
I’ll compare this/last year’s annual bloodwork for any improvements. I hadn’t begun Rapa at that point. Do you recommend any testing that’s not a “normal” annual old person physical test? Which of the standard tests (last year’s) could tell me something about Rapa working or not, in this moment?
I started a topic on the subject of health and Rapa usage. Not sure what was written specifically but it’s important to know that many symptoms overlap in several dx: Lymes, CFS/ME, Fibromyalgia, and so on. I’d love to hear about anyone who has a health thing, taking Rapa.
Is there any way to know I’ve increased too much or if I’m at my sweet spot? I’ve read about mouth sores, diarrhea… side effects, but I’ve not experienced any.
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Your opinion on where Rapa levels should be (range?) the day before next dose? What if result is 0?
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Is there an easy way to know one should STOP THE INCREASING
or is there a DO NOT exceed X mg weekly, parameter.
Anything that might dictate an increase?
Basically, having some information on when to stop increasing or when to consider increasing for optimal benefit, would be valuable info for all of us. Even if the info is a very large range of an educated guess.
I really enjoy reading everyone’s experiences, the receptiveness, and the crazy quick responses!
I could stay on here and read all day.