New to forum, but following Rap for some time. Pls forgive the length of this first post, but I think background is helpful.
My 67 yo wife (Diane aka “Flipper”) diagnosed with BVFTD, a category of dementia, that attacks younger seniors: (45-65 yo. as opposed to elderly 75+). Due to CV, diagnosis was delayed for a couple years after she survived hysterectomy due to cervical cancer (very small tumor, removed, cancer gone11/18). I am her fulltime caretaker, retired litigation attorney, very prolific researcher. She was in excellent health/athletic before all of this (and an accomplished artist for SONY online)…She is still coherent, and active though does not speak much. WE are on daily juicing (12 different veggies/fruit/tumeric/spirulina, 5 yrs now); 20+supplements; and has received 3 professional stem cell injections (700 million+) at a certified clinic/hospital in Guadalajara Mexico. I spent 6 months contacting, investigating, examining; interrogating, stem cell "administrators” (docs, clinics, hospitals whatever) @ 60 venues, across USA, Mexico, Panama, Costa Rica, Caribbean, (etc.). 90% + proved to be snake oil sellers; corrupt; quacks; bankrupt or selling “something” that may/may not be real stems (Whartons Jelly MSC). After vetting; narrowed to 7 which I REQUIRED to sign my 2.5 page contract confirming their harvest/lab protocol; representations as to the quality of their stem cells (#/viability), price etc. (NO I did NOT demand any guarantee of results). Regardless, that’s when 6 ran-- like cockroaches they are-- (a couple of which are notorious Youtube promoters). The winner, not only signed the agreement, but has proven time and again, their transparency/legitimacy (as we prep to go to round #4)! I share all of this, as i am NOT a virgin to investigative research, or the “games” people/professionals play under the guise of “alternative” or “miracle” cures. This a ”life” mission on behalf of my beloved, that I hope others can benefit as well.
I originally looked into Rap, for dementia, and got side-tracked into the “dog” research, which will be beneficial, to our “service dog” Lobo. That WILL move forward. He is dedicated to her, maybe more than I. (o;
As for Dementia, the research/results are clouded by all the AD discussion. All AD is dementia, but not all dementia, is AD. And most AD cannot be confirmed until patient is dead anyway, which oftentimes requires an autopsy.
As for animal studies, I have seen posts here that underscore problems with mice/rats etc. So I will not belabor that further….
So all the research about therapies and AD is problematic from outset.
So “searching” this site, I find little/no discussion on dementia, if anyone here, has experience, pls advise and thnks BB
( I cared for my 86 yo old father with dementia (Flipper helped) , grandma (his mom) had AD, so this is not my first rodeo.)