That’s interesting because for years these people have been told that it was all “in their head” and we can now measure it, and maybe cure it one day?
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I think by definition, something called “ Encephalomyelitis” is in your head.
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Open Medicine Foundation also has a promising lead on a unique marker in the urine as a biomarker. It is higher for female patients than for male patients though. And I think they need to really ensure that it covers of the subtypes of the illness and that they really are no other illnesses that give these high markers. It is interesting that the kidneys are so affected as to produce this marker, even though that is one of the systems that is least notably messed up in this multi-system ailment. It just shows how considerable the damage to all of the organs I can be…
There have also recently been eight spots in the genome that recognized as creating the susceptibility—all associated with ways that the body responds to infection or the neurological systems’ processing of pain. This was a huge genomic study, and like all of the more reputable (controlled and with appropriate requirements for someone to classify as having the illness—which far too few studies have had) large scale studies, it soundly refutes the association of ME/CFS with psychological disorders. There is no genomic propensity for the same. That study is in a pre-pub state.
There’s also a genetic protein in the blood that seems to consistently correlate to the severity of post exertional malaise experienced—and thus the likelihood of falling into an intractability severe state.
If only medical schools would start to catch up and more research funding appear.
There are starts though. The Mayo Clinic used to be a pretty unfriendly place for ME/CFS patients but now has accurate, though very basic, information about ME/CFS diagnosis and care available to all of the doctors who are sign up on their database. And Stanford and Harvard are among the schools that have some solid researchers and info available.