Patient Reported, Aggregated Data on new therapies (Patrick Collison)

It seems like this is exactly the same issue / potential solution in many Aging/Longevity areas (and similar to what we are trying to do here):

SOURCE Tweet: https://x.com/patrickc/status/1967346630539333662

Source:

Patient-reported treatment outcomes in ME/CFS and long COVID

https://www.pnas.org/doi/10.1073/pnas.2426874122

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Buried in comments, https://www.stuffthatworks.health/ which seems to already do what he’s suggesting we do.

How well is an open question; the sign-up process is long, requires you to have and document a specific condition, and they ask a lot of questions.

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