If money were no object what would the most knowledgable people here try if they were diagnosed with
Amyotrophic lateral sclerosis? Asking for a friend 
My dad got ALS and tried all kinds of stuff, held on for 5 years. I know a few things. Lithium is supposed to slow it down a lot. I gave dad a pint of kefir ( I had a culture going for 5 years with raw goat milk) every day and he was actually getting better in the end. The doctors decided not to treat his prostate cancer because they thought he’d die of the ALS. He died of metastatic prostate cancer. It moved to the bone. His ALS was getting better and the doctors were shocked.
So it may have to do with the microbiome. I’d try kefir made at home (the cultures are better). Also could do something with a fecal transplant. I’d love to see it tried without having to see it tried if you know what I mean.
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Ha ha ha - yes I do! That is heartening. There is a goat farm near us where we can get raw goats milk. I might have to organise a visit.
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The doctors decided not to treat his prostate cancer because they thought he’d die of the ALS. He died of metastatic prostate cancer. It moved to the bone. His ALS was getting better and the doctors were shocked.
We also found a significant inverse relationship between prostate cancer and ALS mortality.
Published in 2012. Sounds like a callous decision to me. He’s gonna die of something anyway, so why bother about the cancer?
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So it may have to do with the microbiome.
Below is full text study.
They used sodium butyrate.
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That’s beautiful. I honestly never looked at it since he died in 2007. Maybe I should have shared my findings. Thanks Juan
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Amazing research that you have found here, thankyou!!!
Sodium Phenylbutyrate and Taurursodiol: MedlinePlus Drug Information.
I would try sodium butyrate and ox bile (taurursodiol is just bile acid.
Wouldn’t acarbose work for the butyrate? How about inulin? Or butter.
Is the other one tudca?
I started thinking about ALS and wondered if it were essentially a mitochondrial problem.
I did some looking around and it seems that there is evidence that points this way. In writing the post linked to below I put in some questions to chatGPT and the share for the detailed response to those is also linked below.
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2834877
Use of Common Psychiatric Medications and Risk and Prognosis of Amyotrophic Lateral Sclerosis
Findings In this case-control study including nearly 9000 individuals, prescribed use of anxiolytics, hypnotics and sedatives, or antidepressants was associated with a 34%, 21%, and 26% higher future risk of ALS. Prediagnostic use of such medications was also associated with poor prognosis after ALS diagnosis.
– possibly a reduction in endogenous melatonin.
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